Ya,lalo sa Pilipinas walang support fr government. I, too, am a special needs mom. Dito sa US may binibigay na suporta ang government which I am very grateful for.
Pancho and my son have the same therapists. Yun therapists nila are specialists in their field. We spend around 60-80k/month just for therapies alone (PT, OT, Feeding, Speech, Sped). Maybe k Saab more pa. Hindi pa kasama ang caregiver/yaya, driver, meal allowance, etc because my husband and I have to work. madami pang equipment na kailangan for standing, sitting, etc. Pancho’s stroller is at least around $2k to properly position him. The AFO (foot brace) is 40k, shoes around 40k din. I just pray for provision everyday. My son is 5yrs old and goes to a regular preschool. He can talk, read, at par cognitively with the other kids, can sit, can walk with a gait trainer, etc. But that’s only possible because we’re able to provide all the therapies and things that he needs. Kaya sobra akong affected doon sa batang dinala sa mall na nakalagay sa wagon. Yun na lang ang kaya gawin para sa bata tapos may comments pa na bakit kasi nilalabas pa. If only all the kids with cp had access to everything that pancho has, madaming may cp na better ang condition at hindi matigas na nakahiga na lang sa bahay.
Saab gives away all of pancho’s things to the therapists kaya napapahiram sa ibang kids. Nakagamit na ang son ko ng shoes from Pancho and malaking bagay yun 40k na hndi namin kailangan bilihin.
Same 9:47. I am a special needs mom too and I'm so blessed and thankful na nandito ako sa US kasi may support at benefits talaga from the government (in my State, at least). Medically complex ang child ko and naka-ventilator and always in the hospital. One time almost $2 million ang bill, akala ko mamumulubi na ako sa pagbayad pero sinalo ng Medicaid kaya wala akong binayaran. Naisip ko kung nasa Pinas siguro ako lubog na kami sa utang, or much worse, baka wala na ang anak ko. I feel bad for those na may special needs na nasa Pinas kasi walang tulong from the goverNment. May friend ako na may special needs din ang anak sa pinas pero can't afford sa mga therapies kasi sobrang mahal at walang narereceive na tulong. Nakakalungkot lang talaga.
12:13 curious lang po at wala akong alam sa systema sa america, sa mga may special needs lang po ba may tulong ang govt? kasi marami din po akong naririnig na mga ‘kano na may ayaw sa healthcare system diyan.
1:07 I have no idea exactly why they are complaining about the healthcare here but maybe kasi it used to be a lot better than now? 16 years pa lang ako dito sa US so not sure how it was before and mahirap din magsalita on something that I personally haven't experienced. I am just sharing my experience with having a special needs kid here vs sa Pinas. It's definitely a lot better here. Also, I know they have benefits for those with low income din naman. Where I live, they have benefits for the WIC (women, infants and children) which aims to safeguard the health of low-income women, infants, and children up to age 5 who are at nutrition risk by providing nutritious foods to supplement diets, information on healthy eating, and referrals to health care. You just have to know the resources and you'll find out na madami din palang help.
@1:07 Unlike Pinoys kase, mababa ang tolerance ng Americans sa "pagtitiis". But I have a Pinoy friend - undocumented. may cancer. but got treatment until she died. Libre nga manganak dito eh pag walang insurance ka. & you will not be denied healthcare if nasa hospital ka na. & That's why our insurance is sooooo expensive!
From what i see sa mga medical series/shows like Greys anatomy ay u need to meet certain/specify criteria para magrant ng insurance. Tulad sa isang episode n couples need to divorce para sa ganyun ay mameet ni patient/wife ang support needed for a solo unemployed person. Kasi pagmarried, insurance considered it n may means sila magpagamot and may sasalo sa gastusin. (
Marami rin kasi ang mga crocs n medical insurance kaya namamatay n lng ang patient without being able to use their own insurance kahit ang laki n nang nahulog nila.
Naalala ko tuloy yung anak ng kapitbahay namin. Sobrang bait nya at mabuting nanay talaga siya. Bantay sarado na nya yung anak nya na may autism pero talagang nakakawala pa din.
One time, 4 days hindi umuwi. Nasa MOA pala at palakad lakad doon. Salamat sa Diyos at may mabubuting tao na naghatid sa police station.
One time din biglang nawala. Ayun pala sumama sa ka brgy namin na ililibing. Takang taka yung pamilya ng namatay kung sino yung bata na sumama sa Jeep kasi di nila kilala. Pero hinatid nila sa brgy tapos ng libing. Kaya nakauwi pa din.
My youngest is also a SNED and now in her early 30s. Looking back noong toddler pa siya, talagang hirap ako dahil in denial yung mga kasama ko noon so house. But I need to stand for my daughter and I told myself na kung ayaw nilang tumulong kakayanin kong mag-isa. I'm proud to what I achieved so far. At the age of seven nagsimulang magsalita ang anak KO though I have to admit kulang na kulang pa ang dapat na maranasan niya to improve. But still I thank God sa improvement niya.
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Pancho is blessed to have parents like them. They have the means to support him. Yung ibang bata who are like him kawawa pag mahirap ang magulang.
ReplyDeleteYa,lalo sa Pilipinas walang support fr government.
DeleteI, too, am a special needs mom. Dito sa US may binibigay na suporta ang government which I am very grateful for.
Pancho and my son have the same therapists. Yun therapists nila are specialists in their field. We spend around 60-80k/month just for therapies alone (PT, OT, Feeding, Speech, Sped). Maybe k Saab more pa. Hindi pa kasama ang caregiver/yaya, driver, meal allowance, etc because my husband and I have to work. madami pang equipment na kailangan for standing, sitting, etc. Pancho’s stroller is at least around $2k to properly position him. The AFO (foot brace) is 40k, shoes around 40k din. I just pray for provision everyday. My son is 5yrs old and goes to a regular preschool. He can talk, read, at par cognitively with the other kids, can sit, can walk with a gait trainer, etc. But that’s only possible because we’re able to provide all the therapies and things that he needs. Kaya sobra akong affected doon sa batang dinala sa mall na nakalagay sa wagon. Yun na lang ang kaya gawin para sa bata tapos may comments pa na bakit kasi nilalabas pa. If only all the kids with cp had access to everything that pancho has, madaming may cp na better ang condition at hindi matigas na nakahiga na lang sa bahay.
DeleteSaab gives away all of pancho’s things to the therapists kaya napapahiram sa ibang kids. Nakagamit na ang son ko ng shoes from Pancho and malaking bagay yun 40k na hndi namin kailangan bilihin.
Same 9:47. I am a special needs mom too and I'm so blessed and thankful na nandito ako sa US kasi may support at benefits talaga from the government (in my State, at least). Medically complex ang child ko and naka-ventilator and always in the hospital. One time almost $2 million ang bill, akala ko mamumulubi na ako sa pagbayad pero sinalo ng Medicaid kaya wala akong binayaran. Naisip ko kung nasa Pinas siguro ako lubog na kami sa utang, or much worse, baka wala na ang anak ko. I feel bad for those na may special needs na nasa Pinas kasi walang tulong from the goverNment. May friend ako na may special needs din ang anak sa pinas pero can't afford sa mga therapies kasi sobrang mahal at walang narereceive na tulong. Nakakalungkot lang talaga.
Delete12:13 curious lang po at wala akong alam sa systema sa america, sa mga may special needs lang po ba may tulong ang govt? kasi marami din po akong naririnig na mga ‘kano na may ayaw sa healthcare system diyan.
Delete1:07 I have no idea exactly why they are complaining about the healthcare here but maybe kasi it used to be a lot better than now? 16 years pa lang ako dito sa US so not sure how it was before and mahirap din magsalita on something that I personally haven't experienced. I am just sharing my experience with having a special needs kid here vs sa Pinas. It's definitely a lot better here. Also, I know they have benefits for those with low income din naman. Where I live, they have benefits for the WIC (women, infants and children) which aims to safeguard the health of low-income women, infants, and children up to age 5 who are at nutrition risk by providing nutritious foods to supplement diets, information on healthy eating, and referrals to health care. You just have to know the resources and you'll find out na madami din palang help.
Delete@1:07 Unlike Pinoys kase, mababa ang tolerance ng Americans sa "pagtitiis". But I have a Pinoy friend - undocumented. may cancer. but got treatment until she died. Libre nga manganak dito eh pag walang insurance ka. & you will not be denied healthcare if nasa hospital ka na. & That's why our insurance is sooooo expensive!
Delete7:53 ok na yan baks kesa dito sa Eu na pasan mo ang mga walang trabaho at mga batugan! May allowance pa yang kasama, hindi lang health insurance. 🤣
DeleteFrom what i see sa mga medical series/shows like Greys anatomy ay u need to meet certain/specify criteria para magrant ng insurance. Tulad sa isang episode n couples need to divorce para sa ganyun ay mameet ni patient/wife ang support needed for a solo unemployed person. Kasi pagmarried, insurance considered it n may means sila magpagamot and may sasalo sa gastusin. (
DeleteMarami rin kasi ang mga crocs n medical insurance kaya namamatay n lng ang patient without being able to use their own insurance kahit ang laki n nang nahulog nila.
Naalala ko tuloy yung anak ng kapitbahay namin. Sobrang bait nya at mabuting nanay talaga siya. Bantay sarado na nya yung anak nya na may autism pero talagang nakakawala pa din.
ReplyDeleteOne time, 4 days hindi umuwi. Nasa MOA pala at palakad lakad doon. Salamat sa Diyos at may mabubuting tao na naghatid sa police station.
One time din biglang nawala. Ayun pala sumama sa ka brgy namin na ililibing. Takang taka yung pamilya ng namatay kung sino yung bata na sumama sa Jeep kasi di nila kilala. Pero hinatid nila sa brgy tapos ng libing. Kaya nakauwi pa din.
My youngest is also a SNED and now in her early 30s. Looking back noong toddler pa siya, talagang hirap ako dahil in denial yung mga kasama ko noon so house. But I need to stand for my daughter and I told myself na kung ayaw nilang tumulong kakayanin kong mag-isa. I'm proud to what I achieved so far. At the age of seven nagsimulang magsalita ang anak KO though I have to admit kulang na kulang pa ang dapat na maranasan niya to improve. But still I thank God sa improvement niya.
ReplyDelete